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[2015], Adult, Harper Avenue Call No: 616.550 U79b Edition: 1st ed. Availability:1 of 1 At Your Library Summary Note: The story begins on St. Stephen's Day, 2010, in St. John's, NL, when the author gives birth to a baby girl named Sadie Jane who has a shock of snow-white hair. After three months of medical testing, Sadie is diagnosed with albinism, a rare genetic condition where pigment fails to form in the skin, hair and eyes. She is visually impaired and faces a lifetime indoors. A journalist and folklore scholar accustomed to processing the world through other people's stories, Emily is drawn to understanding her child's difference by researching the cultural beliefs associated with albinism worldwide.
